|
|
|
The Association of Canadian Universities for Northern Studies was founded
at Churchill, Manitoba in 1977, and incorporated in 1978. Registered as
a charitable or ganization, ACUNS is a voluntary association of Canadian
universities that have northern interests.
Tony Williamson, Chairman
|
Since 1982, the Association’s statement of ethical principles for the
conduct of research in the North has become one of the most widely disseminated
and reproduced in Canada. Times, however, have changed in the North. Northern
communities, governments, groups and individuals have pointed out that
the principles needed adjustment to reflect developments in the North since
then. We believe that the revised statement more accurately reflects the
needs and concerns of northern communities and of the researchers who work
there.
Amanda Graham, Yukon College
|
|||||
|
In too many cases, researchers have worked in isolated communities without
regard for the people who live there. Communities have been disrupted,
and essential local resources used without consultation. Privacy is difficult
in small communities, creating additional problems for participants. Guidelines,
or principles, are needed so that research may be carried on with a minimum
of friction and social disruption.
Northerners are involved with research in several different ways:
|
Since the publication of the Ethical Principles in 1982, they have proven
their worth by becoming the most widely cited and adopted among northern
researchers in Canada. Since 1981 the situation in the North has changed
significantly. First Nations, Inuvialuit, and Inuit have settled land claims
and, in many cases, related Self-Government Agreements. Land and other
regimes have altered. Researchers now find the research context shifting,
often unpredictably. Communities have sometimes found themselves and their
concerns disregarded by researchers. A renewed research relationship has
been called for and is emerging.
|
|||||
|
|
|
|||||
| 1. Researchers should abide by any local laws, regulations or protocols
that may be in place in the region(s) in which they work. (New)
Commentary:
|
||||||
| 2. There should be appropriate community consultation at all stages
of research, including its design and practice. In determining the extent
of “appropriate” consultation, researchers and communities should consider
the relevant cross-cultural contexts, if any, and the type of research
involved. However, incorporation of local research needs into research
projects is encouraged. (New).
Commentary:
|
||||||
| 3. The research should respect the language, traditions and standards of the community. | 3. Mutual respect is important for successful partnerships. In the
case of northern research, there should be respect for the language, traditions,
and standards of the community and respect for the highest standards of
scholarly research. (3.)
Commentary:
|
|||||
| 1. The research must respect the privacy and dignity of the people. | 4. The research must respect the privacy and dignity of the people.
Researchers are encouraged to familiarize themselves with the cultures
and traditions of local communities. (1.)
Commentary:
|
|||||
| 2. The research should take into account the knowledge and experience of the people. | 5. The research should take into account the knowledge and experience
of the people, and respect that knowledge and experience in the research
process. The incorporation of relevant traditional knowledge into all stages
of research is encouraged. (2.)
Commentary:
|
|||||
| 6. For all parties to benefit fully from the research, efforts should
be made, where practical, to enhance local benefits that could result from
research, and, where possible, provide training and/or employment in the
communities affected. (New)
Commentary:
|
||||||
| 4. The person in charge of the research is accountable for all decisions on the project, including the decisions of subordinates. | 7. The person in charge of the research is accountable for
all decisions on the project, including the decisions of subordinates.
(4.)
|
|||||
| 5. [No research should begin before being fully explained
to those who might be affected.]
6. No research should begin without the consent of those who might be affected. 9. [Informed consent should be obtained from each participant in research, as well as from the community at large.] |
8. No research involving living people or extant environments should
begin before obtaining the informed consent of those who might be unreasonably
affected or of their legal guardian. (6.)
Commentary:
|
|||||
| 7. In seeking informed consent, researchers should clearly identify sponsors, purposes of the research, sources of financial support, and investigators responsible for the research. | 9. In seeking informed consent, researchers should clearly identify
sponsors, purposes of the research, sources of financial support, and investigators
responsible for the research. (7.)
|
|||||
| 8. In seeking informed consent, researchers should explain the potential effects of the research on the community and the environment. | 10. In seeking informed consent, researchers should ex plain the potential
beneficial and harmful effects of the research on individuals, on the community
and/ or on the environment. (8.)
|
|||||
| 10. Participants should be fully informed of any data gathering techniques to be used (tape and video recordings, photos, physiological measures, etc.), and the use to which they will be put. | 11. The informed consent of participants in research in volving human
subjects should be obtained for any information-gathering techniques to
be used (tape and video recordings, photographs, physiological measures,
etc.), for the uses of information gathered from participants, and for
the format in which that information will be displayed or made accessible.
(10.)
Commentary:
|
|||||
| 12. Research subjects should remain anonymous unless they have agreed to be identified; if anonymity cannot be guaranteed, the subject must be informed of the possible consequences of this before becoming involved in the research. | 12. The informed consent of participants should be obtained if they
are going to be identified; if confidentiality cannot be guaranteed, the
subject must be informed of the possible consequences of this before becoming
involved in the research. (12.)
|
|||||
| 11. No undue pressure should be applied to get consent for participation in a research project. | 13. No undue pressure should be applied to obtain consent for participation
in a research project. (11.)
|
|||||
| 13. If, during the research, the community decides that the research
may be unacceptable to the community, the researcher and the sponsor should
suspend the study.
|
14. A community or an individual has the right to withdraw
from the research at any point. (13.)
|
|||||
| 14. On-going explanations of research objectives, methods, findings and their interpretation should be made available to the community, with the opportunity for the people to comment before publication; [summaries should also be made available in the local language.] | 15. On-going explanations of research objectives, methods, findings and their interpretation should be made available to the community, with the opportunity for the people to comment before publication. (14.) | |||||
| 15. Subject to the requirements for anonymity, des criptions of the data should be left on file in the communities from which it was gathered, along with descriptions of the methods used and the place of data storage. Local data storage is encouraged. | 16. Subject to the requirements for confidentiality, descriptions
of the data should be left on file in the communities from which it was
gathered, along with descriptions of the methods used and the place of
data storage. Local data storage is encouraged. (15.)
|
|||||
| 14. . . .; summaries should also be made available in the
local language.
16. All research reports should be sent to the communities involved. |
17. Research summaries in the local language and research
reports should be made available to the communities involved. Consideration
also should be given to providing reports in the language of the community
and to otherwise enhance access. (14./16.)
|
|||||
| 17. All research publications should refer to informed consent and community participation. | 18. All research publications should refer to informed consent and
community participation, where applicable. (17.)
|
|||||
| 18. Subject to the requirements for anonymity, publications should give appropriate credit to everyone who contributes to the research. | 19. Subject to requirements for confidentiality, publications should
give appropriate credit to everyone who contributes to the research. (18.)
|
|||||
| 20. Greater consideration should be placed on the risks to physical,
psychological, humane, proprietary, and cultural values than to potential
contribution of the research to knowledge.
Commentary:
|
||||||
|
The principles refer to research in its broadest sense, including fundamental or applied research in the physical, biological, or social sciences. Surveys or moni toring studies would also be included. In general, “research” includes all technological activities in the North. Even mineral and petroleum exploration surveys would be expected to honour the general principles. However, the more detailed principles on informed consent and reporting of research results are meant specifically for researchers and might not apply to all technological activities. The principles focus on those aspects of science that affect local people,
communities and their environment. Even where research does not involve
the local people in an obvious way, it may still have effects on the land,
water or wildlife of the region, and may thus affect the people indirectly.
The geographic area of concern includes the Yukon Territory, the Northwest
Territories Nouveau-Québec, Labrador, and the northern parts
of the provinces from Ontario to British Columbia (the Extreme North, Far
North and Middle North as defined by Louis-Edmond Hamelin (1975)). Although
the emphasis is on isolated northern communities, the general principles
are not unique to the North and most of them could be applied elsewhere.
|
The principles refer to research in its broadest sense, including fundamental or applied research in the physical, biological, or social sciences. Surveys or monitoring studies would also be included. In general, “research” includes all technological activities in the North. Even mineral and petroleum exploration surveys would be expected to honour the gen eral principles. However, the more detailed principles on informed consent are meant specifically for researchers whose work involves human subjects and might not apply to purely technological activities. The principles, however, hold that where such activities might affect individuals or communities, there be consultation because the principles focus on the practical aspects of science that can affect local people, communities and the environment. Even where research does not involve local people in an obvious way, it may still have effects on the land, water or wildlife of the region, and may thus affect the people indirectly. The word “community” is not restricted to a limited area of settlement. The surrounding land that supplies resources for the settlement and the people who live there are viewed as part of the community. In addition, there are communities of interest within geographical communities. These, too, should be considered where research activities might affect them. The geographic area of concern includes the Yukon Territory, the Northwest Territories and its successors (Nunavut and the currently unnamed Western Territory), Nouveau-Québec, Nunavik (Labrador), and the northern parts of the provinces from Ontario to British Columbia (the Extreme North, Far North and Middle North as defined by Louis-Edmond Hamelin (1975)). Although the emphasis is on isolated northern communities, these general principles are not unique to the North and most of them could be applied elsewhere. |
|||||
Two major tasks must begin if these principles are to be put into operation: 1. Continuing assessment of the principles; and
The first task, assessment and re-assessment, requires that the principles be widely discussed. Information on the principles should be given to northern communities and organizations, and to scientists. Critical comments should be sought from all parties. The feedback will provide the basis for assessing and honing the prin ciples. The second task, developing practical procedures, is important if the general principles are to be applied in specific cases. The administration and planning of research projects should proceed in ways that result in direct application of the principles. Workable methods will vary from region to region, and the principles will have to prove practical in the field. This means that codes of good practice can be developed only from test cases where such principles are being applied. This longer term task can begin immediately because some organizations are already using research guidelines oftheir own. It is hoped that those organizations will share their experiences as the general principles and codes of practice are developed. |
In applying these principles to actual research, it is important to understand what they are not intended to do. They are not intended to regulate northern research —that is the responsibility of sponsoring organizations, northern governments or communities whose laws, guidelines and protocols will compel certain behaviour. And they are certainly not intended to be the last word on this matter. They are, instead, intended to guide the conduct of research in the North in general ways. They are conceived as general principles that will encourage research that is fair, honest, open and, where necessary, conducted with the consent and cooperation of whatever people or communities will be involved or affected or who might benefit or suffer harm from the research. Some types of physical science or exploratory research might not appear to require the researcher to consider all the principles we've included here. This is a particularly important point. Research on physical phenomena at a distance from communities, traplines, hunting territories or traditional lands, might need no thing beyond the applicable permits. In other areas, the situation might require discussion of a project with a community. A researcher might not need to secure, for example, the informed consent of an individual as aparticipant or a subject in the research project. Nevertheless, the researcher might have to consider securing informed consent of an individual who might be a partner, a collaborator, or an informant, or of an individual or a community that might have to live with the effects of the research results or of its actual conduct (on com munity relations, game, land, water, etc.). The situation in the North has changed considerably in the fifteen years since these Principles were first articulated. Both those who ask questions and those who help to supply the answers have new needs. Respect is vital in all aspects of the research enterprise. Respect for knowledge, expertise, world views, ways of life must flow in all directions. Genuine respect will enhance the research enterprise in the North and benefit all who live and work there. |
|||||
These principles are based on “Ethical Principles for the Conduct of Research in the North” prepared by the Working Group on Canada/MAB Sub-Program 4 (Science for the North), March 1977. The ACUNS Committee on Relations with Northern Peoples studied the MAB document as well as ethical guidelines prepared by other groups, and presented its recom mendations to the Association’s Annual General Meet ing in May 1981. The Committee’s document was accepted by the ACUNS Council, subject to some amendment, responsibility for which was delegated to the Board of Directors. At a meeting on September 22, 1981, the ACUNS Board of Directors gave approval to the present document. |
These principles are based on “Ethical Principles for the Conduct of Research in the North” prepared by the Working Group on Canada/MAB Sub-Program 4 (Science for the North), March 1977. The ACUNS Committee on Relations with Northern Peoples studied the MAB document as well as ethical guidelines prepared by other groups, and presented its recommendations to the Association’s Annual General Meeting in May 1981. The Committee’s document was accepted by the ACUNS Council, subject to some amendment, responsibility for which was delegated to the Board of Directors. At a meeting on September 22, 1981, the ACUNS Board of Directors gave approval to the 1982 document. In November 1995, the newly elected Board of ACUNS undertook to review the principles and to make recommendations for its change to the ACUNS Council. In November 1996, a two-person Board committee presented a discussion document to the Council at the Annual General Meeting. Comments on the document and, later, on the draft principles by researchers, academics, government officials, Aboriginal organizations, and research bodies as well as research into ethical guidelines produced by a host of other groups, associations, regulatory and research agencies, led to a draft of the revised document being presented to and accepted at the 1997 ACUNS Annual General Meeting. |
|||||